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Showing posts from June, 2020

A Letter to the Mama Who Has Just Found Out Her Baby Has Noonan Syndrome

Hey, beautiful Mama, I know your scared. I know that this isn't how you thought motherhood would be like. I know that you feel alone, confused and afraid. You possibly haven't heard of Noonan Syndrome before.  Your tired and weary eyes are frantically searching for answers on Google. You turn your head and see your bundle of joy sleeping soundly and a tear escapes from your eye. You wonder what sort of life your little love with lead and another tear escapes from your eye followed by another. You realise he/she will have to face challenges no child should. But Mama. Breath. Everything will be okay. You will be okay. Your baby will be okay. One step at a time and you will figure it out. Your little love will lead a beautiful life, a unique and wonderful person who will always dance to the beat of their own drum. Who will make you smile and make every small milestone feel like a victory.  You will appreciate life a little more loudly as you and your little love will power through